It's 3:00 in the morning. Where are you? Sleeping, working, praying, playing?
Typically, I'd be sound asleep with visions of Russell Crowe and Hugh Jackman dancing in my head.
Not tonight - no, my slumber is stolen, my dreams interrupted by this hideous disease known as Dermatomyositis.
My skin is red, hot, burning. No relief in sight. Cool showers make it worse. Creams or ointments have no effect.
I found two bags of frozen shredded zucchini in my freezer. One on my arm, the other on my chest. Ahhhhh.........a moment of relief.
All this because the insurance company is dragging their feet on the renewal of my medication approval.
Without this medication, my skin will get worse to the point of open ulcers on my arms, back and chest. My legs and arms have started weakening and eventually I won't be able to walk.
As it is, internally I have a fire as well. My muscles and some organs inflamed. Waiting for the IV Meds. I want to scream. This has been my life the past few nights. It's just getting to be to much for me to handle anymore.
